Archive for the ‘CHOP’ Category

Mya’s Bench – A Community Effort

June 3, 2013

Over the past few months, the Downingtown MOMS Club has posted on the Chesco Moms page some pleas for support.  Well, we’d like to thank this amazing community for coming through!  This past Saturday was a special day for the club.  After 8 months of active fund raising, we proudly dedicated a bench to Mya Rose Anderson-Brophy on the Struble Trail in Downingtown.

Some members of the Downingtown MOMS Club

For those unfamiliar with the story, in April 2011, just before Mya turned 19 months, her mom, Emily, took Mya to the pediatrician after noticing her left eye was swollen and droopy.  They were immediately sent to DuPont Children’s Hospital in Wilmington, DE where different x-rays and scans were done. The following day, Mya was diagnosed with Stage 4 Neuroblastoma. She was eventually transferred to CHOP for treatment (chemotherapy, radiation, and surgeries). Mya fought an amazing fight against this cancer for 14 months, even going into remission at one point, until her body just couldn’t take anymore. The tumors continued spreading and unfortunately there was nothing left for the doctors to do. Mya passed away in July 2012, just 2 months before her 3rd birthday.  Mya was such a sweet, precocious, and smart child who is greatly missed by a lot of people.

While the club mourned the loss of precious Mya, a committee was formed to raise money to purchase a bench on Struble Trail in Mya’s favorite spot (near the dam).  It started with Kids Day in the Park (Bell Tavern). We raffled off baskets of prizes donated by club members and local businesses and we sold bracelets that our children made. We raised $292.  Next was our Preschool Open House at United Sports Training Center. We had 17 preschools attend the event and we made $136.  In February,  we had a Family Swim Night for the community at ACAC in West Chester where we raised $928 – and met our fundraising goal. Also, along the way we received donations from people in the Downingtown community who were touched by Mya’s story. Even though we met our goal, we had one last event and that was our Spirit Night at Chick-Fil-A of Ashbridge Square in April. This event raised $470.

Essential helping hands

All in all, our events raised $2,026.00 total. The bench itself cost $1,234.90 and supplies were about $150.  Over $600 will be donated to CHOP for pediatric cancer in honor of Mya.

As we like to say, never underestimate a small group of mothers or the power of the Downingtown community!  We also have to give praise and show our appreciation to Owen and Joe from Chester County Parks and Recreation for their efforts, support, and help.  And a big shout out to Brian Betz and his father Thom. Brian is a sophomore at Bishop Shanahan High School and installed the bench as part of his Eagle Scout project. We also appreciated the mayor, Josh Maxwell, for coming out to the dedication ceremony and speaking on behalf of the community.  The Mayor declared June 1st as “Mya’s Day” in Downingtown!

The Mayor of Downingtown

The bench on Struble Trail is a great way for us all to remember Mya and to keep her memory alive in this loving community.  We hope that the next time you walk along the trail, you will sit on her bench and think of the short but impacting life that Mya Rose had on us all.

NEXT STEPS WORKSHOP: A workshop for parents supporting young children newly diagnosed with an autism spectrum disorder

August 31, 2010
The Center for Autism Research and The Regional Autism Center at
The Children’s Hospital of Philadelphia invite you to attend the

NEXT STEPS WORKSHOP
a workshop for parents supporting young children newly diagnosed with an autism spectrum disorder

Wednesday, September 22, 2010
8:30 a.m. – 3:00 p.m.
3535 Market Street, 16th Floor
Conference Room D
Philadelphia, PA 19104

Presentation topics will include:
Diagnosis
Communication
Occupational Therapy
Education
Medical Assistance
Special Education Law
Health Issues

Plus a dicussion with a panel of parents who have made the next steps with their children

Cost: $20.00 (includes take-home Resource Binder, Continental Breakfast, and Lunch)
This event is subsidized by the Bucks County Autism Support Coalition

Register for the Next Steps Workshop
Interested families must register by September 15th.

For questions or more information,
please contact Gail Stein, MSW at steing1@email.chop.edu or 267-426-4910.

The Next Steps Workshop is being presented by:
The Regional Autism Center
Center for Autism Research (CAR)
Bucks County Autism Support Coaltion

Healthy Kids Day!

May 19, 2009

Please join us for the first Children’s Hospital of Philadelphia Healthy Kids Day. Come and get ideas for great health from the nation’s top children’s hospital and its community partners. Ask experts about nutrition, vaccines, managing asthma, injury and prevention and much more.

When: Saturday, May 30, 2009, Noon to 5 p.m., rain or shine
Where: Mann Center for the Performing Arts

This celebratory event is free to the public, but tickets are required. Come and enjoy:

  • Concert performance by The Laurie Berkner Band featuring Susie Lampert, Adam Bernstein and Laurie Berkner, with special guest Bob Golden
  • Healthy food and drinks (while supplies last)
  • Children’s activities

Admission to Healthy Kids Day is free of charge, but you must register for the event. Seat assignments for the concert, including lawn, will be distributed at the gate on a first come, first served basis. Children under the age of 18 must be accompanied by an adult.

For information, please e-mail us at healthykidsday@email.chop.edu or call our hotline at 1-877-HKD-CHOP (1-877-453-2467).

Visit the Mann Center for the Performing Arts Web site for directions. Check our Timeline of Events and Sponsorship pages for more.